Doing it my Way

In this section

Doing it my way business cardsIn 2013 St Anne’s Community Services were approached by the Clinical Commissioning Groups in Kirklees, West Yorkshire to produce a package of materials to support people with learning disabilities, their families and support staff to recognise and manage health issues and enable them to plan for changing health needs.

Guides and Buiness cardsWe set up a project team made up of a range of people with the right skills.

Our team was led by an area manager with personal experience of supporting people with learning disabilities both as a professional and as a family carer, specialist nurses who support people with learning disabilities who also have complex health needs, a specialist trainer and front-line support staff. This gave us a breadth of knowledge and experience to draw upon.

We consulted other professionals and had our work peer reviewed by the local Kirklees Hospice – Kirkwood and various other providers and specialist GP’s.

We are proud to say the result of the work is “Doing It My Way”

Booklet

NHS England

Doing it my way is referenced in the NHS England publication Delivering high quality end of life care for people who have a learning disability. We appear on page 24.

We have a comprehensive range of guidance documents and suggested support planning tools, we have communication guidance and our film which is an honest and powerful reflection on why we worked so hard to produce My Way and why it could well be a great package for all providers of support to people with learning disabilities to use.

Doing it my way materials

 

POLE

We created “POLE” which is our “Probabilities OLife Expectancy” guidance which supports the person with learning disabilities, their family and support staff to recognise and reflect on their health. We know from a growing body of evidence that the experience of health may well be different for people with learning disabilities and using POLE provides a unique, bespoke way of assessing the needs of the individual on an ongoing basis including end of life support. Our POLE guidance supports the person receiving support and their whole circle of support to understand the impact health conditions may have. It promotes strong advocacy when supporting someone to get the right support at the right time and encourages everyone to understand the impact a health condition may have so that everyone knows what might happen and can plan before a crisis happens.

Leaflet and Disc

Our experience is that even when facing the most complex health conditions and having an illness that the person cannot recover from talking and planning makes the journey, however tough, more bearable as there are fewer crises. Care is delivered in a planned way and the person’s circle of support know what to expect and can prepare themselves so they are able to support their relative or friend with a learning disability and each other at this saddest of times.

How to purchase

We can provide our excellent guidance documentation and our film.

We can also provide training which is invaluable in enabling the implementation and cultural embedding of My Way.

How to contact us

For more information please complete an Initial Enquiry Form or you can get in touch using the details below:

Marnie Walker at marnie.walker@st-annes.org.uk

Nicky Lyall at nicky.lyall@st-annes.org.uk

 

Guide

Coronavirus (Covid 19) Statement

Due to the exceptional circumstances due to the ongoing Coronavirus (also known as Covid 19) and the Government rules about self-isolating it is very important to reduce the risk of cross infection to all our Clients and staff teams. Our teams are working hard to support all our clients and are committed to keeping everyone as safe as possible.

This means that, in most circumstances, and in line with government information regarding self-isolation and staying at home there should be no visitors to any of our services.

We know, however, that this will be very distressing for some of our Clients.

Therefore, we are saying there must be no visitors to services unless there are exceptional circumstances and the visit is essential.

Before a visit can take place, this must be risk assessed by the manager considering government advice and the individual circumstances. Before setting off on any visit to your relative/friend please get in contact with St Anne’s staff to discuss your visit.

Our services are using all kinds of technology, including social media to make sure that the people we support can stay in touch with those important to them

St Anne’s has developed a visitors protocol to enable visits to begin again in North Yorkshire, East Yorkshire, Durham, Middlesbrough and Leeds care homes.

In line with Government & local Council Guidelines each Client may have one family member or other person who is close to them visit on a regular basis.

Decisions where visitors can go are being based on Individual Local Authority advice following Government guidelines.

This message will be updated regularly